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Validity of Self-reported Endometriosis: a Comparison Across Four Cohorts by A L Shafrir; L A Wise; J R Palmer; Z O Shuaib; L M Katuska; P Vinayak; M Kvaskoff; K L Terry; S A Missmer is a Medicine article available to read on EtoBox.

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## Abstract ## STUDY QUESTION How accurately do women report a diagnosis of endometriosis on self-administered questionnaires? ## SUMMARY ANSWER Based on the analysis of four international cohorts, women self-report endometriosis fairly accurately with a > 70% confirmation for clinical and surgical records. ## WHAT IS KNOWN ALREADY The study of complex diseases requires large, diverse population-based samples, and endometriosis is no exception. Due to the difficulty of obtaining medical records for a condition that may have been diagnosed years earlier and for which there is no standardized documentation, reliance on self-report is necessary. Only a few studies have assessed the validity of self-reported endometriosis compared with medical records, with the observed confirmation ranging from 32% to 89%. ## STUDY DESIGN, SIZE, DURATION We compared questionnaire-reported endometriosis with medical record notation among participants from the Black Women’s Health Study (BWHS; 1995-2013), Etude Epidémiologique auprès de femmes de la Mutuelle Générale de l’Education Nationale (E3N; 1990-2006), Growing Up Today Study (GUTS; 2005–2016), and Nurses’ Health Study II (NHSII; 1989–1993 first w

Who reads Validity of Self-reported Endometriosis: a Comparison Across Four Cohorts?

Author

A L Shafrir; L A Wise; J R Palmer; Z O Shuaib; L M Katuska; P Vinayak; M Kvaskoff; K L Terry; S A Missmer

Publisher

Oxford University Press (OUP)

Published

2021

Language

EN

Field

Medicine (Health Sciences)