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A family carer decision support intervention for people with advanced dementia residing in a nursing home: a study protocol for an international advance care planning intervention (mySupport study) by Andrew J E Harding; Julie Doherty; Laura Bavelaar; Catherine Walshe; Nancy Preston; Sharon Kaasalainen; Tamara Sussman; Jenny T van der Steen; Nicola Cornally; Irene Hartigan; Martin Loucka; Karolina Vlckova; Paola Di Giulio; Silvia Gonella; Kevin Brazil; Wilco P. Achterberg; Mandy Visser; Catherine Buckley; Serena Fitzgerald; Tony Foley; Siobhan Fox; Alan Connolly; Ronan O’Caoimh; Selena O’Connell; Catherine Sweeney; Suzanne Timmons; Christine Brown Wilson; Gillian Carter; Emily Cousins; Kay De Vries; Josie Dixon; Karen Harrison Dening; Catherine Henderson; Adrienne McCann; On behalf of the mySupport Study Group is a Medicine article available to read on EtoBox.

What is A family carer decision support intervention for people with advanced dementia residing in a nursing home: a study protocol for an international advance care planning intervention (mySupport study) about?

## Abstract ## Background Where it has been determined that a resident in a nursing home living with dementia loses decisional capacity, nursing home staff must deliver care that is in the person's best interests. Ideally, decisions should be made involving those close to the person, typically a family carer and health and social care providers. The aim of the Family Carer Decisional Support intervention is to inform family carers on end-of-life care options for a person living with advanced dementia and enable them to contribute to advance care planning. This implementation study proposes to; 1) adopt and apply the intervention internationally; and, 2) train nursing home staff to deliver the family carer decision support intervention. ## Methods This study will employ a multiple case study design to allow an understanding of the implementation process and to identify the factors which determine how well the intervention will work as intended. We will enrol nursing homes from each country (Canada n = 2 Republic of Ireland = 2, three regions in the UK n = 2 each, The Netherlands n = 2, Italy n = 2 and the Czech Republic n = 2) to reflect the range of characteristics in each national

Who reads A family carer decision support intervention for people with advanced dementia residing in a nursing home: a study protocol for an international advance care planning intervention (mySupport study)?

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Author
Andrew J E Harding; Julie Doherty; Laura Bavelaar; Catherine Walshe; Nancy Preston; Sharon Kaasalainen; Tamara Sussman; Jenny T van der Steen; Nicola Cornally; Irene Hartigan; Martin Loucka; Karolina Vlckova; Paola Di Giulio; Silvia Gonella; Kevin Brazil; Wilco P. Achterberg; Mandy Visser; Catherine Buckley; Serena Fitzgerald; Tony Foley; Siobhan Fox; Alan Connolly; Ronan O’Caoimh; Selena O’Connell; Catherine Sweeney; Suzanne Timmons; Christine Brown Wilson; Gillian Carter; Emily Cousins; Kay De Vries; Josie Dixon; Karen Harrison Dening; Catherine Henderson; Adrienne McCann; On behalf of the mySupport Study Group
Publisher
Springer Science and Business Media LLC
Published
2022
Language
EN
Field
Medicine (Health Sciences)