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Challenges and Successes in Raising a Child With Type 1 Diabetes and Autism Spectrum Disorder: Mixed Methods Study by Tamara K Oser; Sean M Oser; Jessica A Parascando; Lee Ann Grisolano; Kanthi Bangalore Krishna; Daniel E Hale; Michelle Litchman; Shideh Majidi; Paul Haidet is a Health Professions article available to read on EtoBox.
What is Challenges and Successes in Raising a Child With Type 1 Diabetes and Autism Spectrum Disorder: Mixed Methods Study about?
## Background Self-management of type 1 diabetes (T1D) requires numerous decisions and actions by people with T1D and their caregivers and poses many daily challenges. For those with T1D and a developmental disorder such as autism spectrum disorder (ASD), more complex challenges arise, though these remain largely unstudied. ## Objective This study aimed to better understand the barriers and facilitators of raising a child with T1D and ASD. Secondary analysis of web-based content (phase 1) and telephone interviews (phase 2) were conducted to further expand the existing knowledge on the challenges and successes faced by these families. ## Methods Phase 1 involved a qualitative analysis of publicly available online forums and blog posts by caregivers of children with both T1D and ASD. Themes from phase 1 were used to create an interview guide for further in-depth exploration via interviews. In phase 2, caregivers of children with both T1D and ASD were recruited from Penn State Health endocrinology clinics and through the web from social media posts to T1D-focused groups and sites. Interested respondents were directed to a secure web-based eligibility assessment. Information related to
Who reads Challenges and Successes in Raising a Child With Type 1 Diabetes and Autism Spectrum Disorder: Mixed Methods Study?
It is typically read by researchers, students, and practitioners in Health Professions.
- Author
- Tamara K Oser; Sean M Oser; Jessica A Parascando; Lee Ann Grisolano; Kanthi Bangalore Krishna; Daniel E Hale; Michelle Litchman; Shideh Majidi; Paul Haidet
- Publisher
- JMIR Publications Inc.
- Published
- 2020
- Language
- EN
- Field
- Health Professions (Health Sciences)