Can I read Consent for Genetic Biobanking in a Diverse Multi-Site Chronic Kidney Disease Cohort on EtoBox?
Consent for Genetic Biobanking in a Diverse Multi-Site Chronic Kidney Disease Cohort by Troost, Jonathan P.; Hawkins, Jennifer; Jenkins, Daniel R.; Gipson, Debbie S.; Kretzler, Matthias; El Shamy, Osama; Bellovich, Keith; Perumal, Kalyani; Bhat, Zeenat; Massengill, Susan; Steigerwalt, Susan; Pennathur, Subramaniam; Brosius, Frank C.; Gadegbeku, Crystal A. is a Medicine article available to read on EtoBox.
What is Consent for Genetic Biobanking in a Diverse Multi-Site Chronic Kidney Disease Cohort about?
## Introduction The goal of this study was to examine patterns in the likelihood of consent to genetic research among participants in a prospective kidney disease cohort and biobank, and to determine demographic, clinical, and socioeconomic factors linked to consent for ongoing and future genetic research. ## Methods The Clinical Phenotyping Resource and Biobank Core (C-PROBE) enrolled 1628 adult and pediatric patients with chronic kidney disease from 2009 to 2017 across 7 sites in the United States. Participants were asked at annual study visits for consent to provide DNA samples for future genetic studies. We compared characteristics of participants by initial consent outcome and consent status at their most recent study visit. ## Results Of the C-PROBE participants, 96% consented to genetic studies at their initial study visit. Although African Americans were slightly less likely to consent at baseline (93% vs. 97%, odds ratio = 0.3, __P__ < 0.02), there were no significant racial or ethnic differences with longitudinal participation. Also, pediatric and adult genetic consent rates were equivalent. The major persistent differences in the likelihood of consent were based on enrol
Who reads Consent for Genetic Biobanking in a Diverse Multi-Site Chronic Kidney Disease Cohort?
It is typically read by researchers, students, and practitioners in Medicine.
- Author
- Troost, Jonathan P.; Hawkins, Jennifer; Jenkins, Daniel R.; Gipson, Debbie S.; Kretzler, Matthias; El Shamy, Osama; Bellovich, Keith; Perumal, Kalyani; Bhat, Zeenat; Massengill, Susan; Steigerwalt, Susan; Pennathur, Subramaniam; Brosius, Frank C.; Gadegbeku, Crystal A.
- Publisher
- Elsevier ; Elsevier Inc.; [Philadelphia]: Elsevier Inc.; Elsevier BV (ISSN 2468-0249)
- Published
- 2018
- Language
- EN
- Field
- Medicine (Health Sciences)