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Research Highlights is a Biochemistry, Genetics and Molecular Biology article available to read on EtoBox.

What is Research Highlights about?

Public interest and expanded research in human genome editing have raised questions about the ethical, legal, and social implications of the technology. Understanding informed consent and the full risks and benefits of treatments will be key. Researchers at the National Human Genome Research Institute (NHGR) asked patients, parents, and physicians in the sickle cell disease community what they needed to know about genome editing so as to make informed decisions about participating in genome-editing clinical trials. The results were published recently in the journal AJOB Empirical Bioethics. The researchers contacted adults with sickle cell disease and parents and physicians of adults and children with the disease. These participants completed a genetic literacy survey, watched an educational video about genome editing, completed a two-part survey, and took part in focus group discussions about CRISPR somatic genome editing. The authors found that all participants wanted informed consent to include the treatment side effects of CRISPR somatic genome editing. Many also wanted to know how such editing works and its impact on their quality of life. The groups reflected on the need to h

Who reads Research Highlights?

Publisher

Nature Publishing Group; Elsevier ; Cell Press; Elsevier BV (ISSN 1525-0016)

Published

2020

Language

EN

Field

Biochemistry, Genetics and Molecular Biology (Life Sciences)