Can I read Parents’ Stories of Sensitive and Insensitive Care by Paediatricians in the Time Leading Up to and Including Diagnostic Disclosure of a Life-limiting Condition in Their Child on EtoBox?

Parents’ Stories of Sensitive and Insensitive Care by Paediatricians in the Time Leading Up to and Including Diagnostic Disclosure of a Life-limiting Condition in Their Child by Ruth Davies; Bryn Davis; Jo Sibert is a Medicine article available to read on EtoBox.

What is Parents’ Stories of Sensitive and Insensitive Care by Paediatricians in the Time Leading Up to and Including Diagnostic Disclosure of a Life-limiting Condition in Their Child about?

## Abstract This study explored parents’ experiences of care by paediatricians in the time leading up to and including diagnostic disclosure of a life‐limiting condition in their child. **Research methods** Qualitative exploration using in depth interviews with a purposive sample of 30 families whose child was diagnosed with a life‐limiting condition. **Results** Parents’ stories centred upon their need to have their concerns and needs as parents validated by paediatricians. Demonstrable qualitative differences were shown to exist between the sensitive and insensitive clinical practices of paediatricians. Parents’ stories identify the need for clinical practice to be based upon a humanistic approach to care. These also identify how sensitive paediatricians achieved this ideal through meeting the ‘double obligation’ of combining technical skills with an understanding of their needs as parents.

Who reads Parents’ Stories of Sensitive and Insensitive Care by Paediatricians in the Time Leading Up to and Including Diagnostic Disclosure of a Life-limiting Condition in Their Child?

Author

Ruth Davies; Bryn Davis; Jo Sibert

Publisher

John Wiley and Sons; Wiley (Blackwell Publishing); Blackwell Publishing Inc.; Wiley (ISSN 0305-1862)

Published

2003

Language

EN

Field

Medicine (Health Sciences)