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The Living Donor Navigator Program Provides Support Tools for Caregivers by Rhiannon D. Reed; A. Cozette Killian; Margaux N. Mustian; Daagye H. Hendricks; Kimberly N. Baldwin; Vineeta Kumar; J. Nicholas Dionne-Odom; Kenneth Saag; Lisle Hites; Natalia V. Ivankova; Jayme E. Locke is a Medicine article available to read on EtoBox.

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## Introduction: The Living Donor Navigator (LDN) program is one of several initiatives designed to help transplant candidates identify living donors with the help of a friend or family member advocate to speak on their behalf. More than half of advocates in the LDN program were the spouse or parent of the candidate and served in a caregiving role. Caregivers for patients awaiting transplantation have reported poorer quality of life than the general population, suggesting more support is needed for this vulnerable group. The purpose of this study was to understand whether the LDN program met the needs of advocates who were also caregivers for the transplant candidate. Methods: We performed a supplementary secondary qualitative analysis of a parent study conducted December 2017-January 2018 with 9 advocates who participated in the LDN program. Transcripts were reanalyzed from focus group discussions, concentrating on comments about caregiving or made by caregivers. Using manual coding and reflexive thematic analysis, we identified broad codes and major themes. Findings: Our re-analysis revealed one theme overlapping with our previous analysis (Support) and 2 new themes specific to c

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Author
Rhiannon D. Reed; A. Cozette Killian; Margaux N. Mustian; Daagye H. Hendricks; Kimberly N. Baldwin; Vineeta Kumar; J. Nicholas Dionne-Odom; Kenneth Saag; Lisle Hites; Natalia V. Ivankova; Jayme E. Locke
Publisher
SAGE Publications
Published
2020
Language
EN
Field
Medicine (Health Sciences)

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