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Global Support for Nemaline Myopathy by Stacy Cossette is a document available to read on EtoBox.

What is Global Support for Nemaline Myopathy about?

This document welcomes people to an international community for those affected by Nemaline Myopathy (NM), a rare genetic muscle disorder. It provides information about support resources including international conferences, online support groups, and organizations dedicated to finding medical treatments for NM. Contact information is given for several community liaisons who can provide local support. People are encouraged to sign up for research registries and donate tissues samples to help scientists studyi

Author

Stacy Cossette

Language

EN