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Elaborating Patient Information with Patients Themselves: Lessons from a Cancer Treatment Focus Group by Nora Moumjid; Magali Morelle; Marie‐Odile Carrère; Thomas Bachelot; Hervé Mignotte; Alain Brémond is a Health Professions article available to read on EtoBox.

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## Abstract **Objective** To assess the significance of patients' input in the elaboration of a patient information booklet. **Design** Qualitative study based on focus group discussions. **Setting** Centre Léon Bérard, a comprehensive cancer centre in the Rhône‐Alpes region of France. **Participants** (1) A multidisciplinary working group (oncologists, health economists and one clinical psychologist) wrote up initial information documents concerning possible breast cancer treatments. (2) A focus group comprised of patients with a history of breast cancer and healthy volunteers discussed their reactions to these documents. **Main outcome measure** Analysis of the focus group's reactions according to key themes predetermined by the working group and related themes introduced by the focus group itself. **Results** The focus group proposed numerous, significant modifications to answer requests for additional information, clarification and better readability in the information booklets. **Discussion/Conclusions** This qualitative analysis showed a significant input of patients' perspective in the elaboration of patient information. It is also an additional support to the feasibility an

Who reads Elaborating Patient Information with Patients Themselves: Lessons from a Cancer Treatment Focus Group?

It is typically read by researchers, students, and practitioners in Health Professions.

Author
Nora Moumjid; Magali Morelle; Marie‐Odile Carrère; Thomas Bachelot; Hervé Mignotte; Alain Brémond
Publisher
John Wiley and Sons; Wiley (Blackwell Publishing); Blackwell Publishing Inc.; Wiley (ISSN 1369-6513)
Published
2003
Language
EN
Field
Health Professions (Health Sciences)

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