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An Exploratory Qualitative Study of Patient and Caregiver Perspectives of Ambulatory Kidney Palliative Care by Alycia A. Bristol; Sobaata Chaudhry; Dana Assis; Rebecca Wright; Derek Moriyama; Katherine Harwood; Abraham A. Brody; David M. Charytan; Joshua Chodosh; Jennifer S. Scherer is a Medicine article available to read on EtoBox.
What is An Exploratory Qualitative Study of Patient and Caregiver Perspectives of Ambulatory Kidney Palliative Care about?
## Objectives: The ideal clinical model to deliver palliative care to patients with advanced kidney disease is currently unknown. Internationally, ambulatory kidney palliative care clinics have emerged with positive outcomes, yet there is limited data from the United States (US). In this exploratory study we report perceptions of a US-based ambulatory kidney palliative care clinic from the perspective of patient and caregiver attendees. The objective of this study was to inform further improvement of our clinical program. Methods: Semi-structured interviews were conducted to elicit the patient and caregiver experience. Eleven interviews (8 patients with chronic kidney disease stage IV or V and 3 caregivers) were analyzed using qualitative description design. Results: We identified 2 themes: "Communication addressing the emotional and physical aspects of disease" and "Filling gaps in care"; Subthemes include perceived value in symptom management, assistance with coping with disease, engagement in advance care planning, program satisfaction and patient activation. Significance of Results: Qualitative analysis showed that attendees of an ambulatory kidney palliative care clinic found
Who reads An Exploratory Qualitative Study of Patient and Caregiver Perspectives of Ambulatory Kidney Palliative Care?
It is typically read by researchers, students, and practitioners in Medicine.
- Author
- Alycia A. Bristol; Sobaata Chaudhry; Dana Assis; Rebecca Wright; Derek Moriyama; Katherine Harwood; Abraham A. Brody; David M. Charytan; Joshua Chodosh; Jennifer S. Scherer
- Publisher
- SAGE Publications
- Published
- 2021
- Language
- EN
- Field
- Medicine (Health Sciences)