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Determinants of participation and quality of life of young adults with cerebral palsy: longitudinal approach and comparison with the general population – SPARCLE 3 study protocol by Arnaud, Catherine (author);Duffaut, Carine (author);Fauconnier, Jérôme (author);Schmidt, Silke (author);Himmelmann, Kate (author);Marcelli, Marco (author);Pennington, Lindsay (author);Alvarelhão, Joaquim (author);Cytera, Chirine (author);Rapp, Marion (author);Ehlinger, Virginie (author);Thyen, Ute (author) is a Medicine article available to read on EtoBox.

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## Background Effective inclusion in society for young people with disabilities is increasingly seen as generating opportunities for self-development, and improving well-being. However, significant barriers remain in the vast majority of activities meaningful for young adults. Research argues that various personal (disabilities, health) and environmental (access to the resources needed, accessible environment, discrimination, lack of personal economic independence) factors contribute to limited participation. However, previous studies conducted in young people with cerebral palsy (CP) mainly investigated the transition period to adulthood, and did not fully consider the whole range of impairment severity profiles or environmental barriers. In this study, we will use the follow-up of the SPARCLE cohort and a comparison group from the general population (1) to investigate the impact of the environment on participation and quality of life of young adults with CP, (2) to determine predictors of a successful young adulthood in educational, professional, health and social fields, (3) to compare quality of life and frequency of participation in social, work and recreational activities wit

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Author

Arnaud, Catherine (author);Duffaut, Carine (author);Fauconnier, Jérôme (author);Schmidt, Silke (author);Himmelmann, Kate (author);Marcelli, Marco (author);Pennington, Lindsay (author);Alvarelhão, Joaquim (author);Cytera, Chirine (author);Rapp, Marion (author);Ehlinger, Virginie (author);Thyen, Ute (author)

Publisher

Springer Science and Business Media LLC

Published

2021

Language

EN

Field

Medicine (Health Sciences)