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A Systematic Review of Patient Engagement Experiences in Brain Disorders by Bertorello, Deborah (author);Brichetto, Giampaolo (author);Folkvord, Frans (author);Theben, Alexandra (author);Zaratin, Paola (author) is a Medicine article available to read on EtoBox.

What is A Systematic Review of Patient Engagement Experiences in Brain Disorders about?

## Background Patient engagement is increasingly considered to be an important element in the treatment of brain disorders to optimise outcomes for patients, society, and healthcare systems. Nonetheless, scientific research examining methodologies to engage patients with brain diseases in Research and Innovation (R&I) is scarce. ## Aim To review existing scientific evidence regarding the engagement of patients with brain disorders in research and innovation. ## Methods Studies were retrieved from several bibliographic databases (publication date between January 2016 and April 2019) with pre-specified selection criteria. ## Results In total, 49 articles were identified as meeting the inclusion criteria and were reviewed systematically. Results showed that there is limited evidence available on the impact and (cost-) effectiveness of patient engagement in (brain) research and innovation. Most published studies are protocols, guidelines, and discussion articles for patient engagement in health research and innovation. Overall, there exists a general consensus to engage patients in every step of the research procedure. Relevant evidence identified includes principles of engagement, def

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Author

Bertorello, Deborah (author);Brichetto, Giampaolo (author);Folkvord, Frans (author);Theben, Alexandra (author);Zaratin, Paola (author)

Publisher

Informa UK Limited

Published

2022

Language

EN

Field

Medicine (Health Sciences)