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Citizens' conceptions of the genome: Related values and practical implications in a citizen forum on the use of genomic information by Chloé Mayeur; Wannes Hoof is a Health Professions article available to read on EtoBox.

What is Citizens' conceptions of the genome: Related values and practical implications in a citizen forum on the use of genomic information about?

## Abstract ## Background The development of large data sets, including genomic data, coupled with rapid advances in personalized medicine where citizens increasingly face complex choices about the use of their genomic information implies that citizens are essential stakeholders in genomics. They should be engaged in the ethical, legal and societal issues to produce a framework that fosters trust and allows them to guide the technology based on their values. ## Objective This article highlights that citizens' conceptions of the human genome inform about and make sense of their main values regarding the use of genomic information, which is critical for policymakers, experts and stakeholders to understand to maintain the public support in genomics. ## Method Through an inductive thematic approach, we reanalysed data collected for the Belgian citizen forum, which aimed to produce recommendations for the Ministry of Public Health and other stakeholders. ## Results Citizens expressed four conceptions of the genome that determined which uses of genomic information they supported: the most intimate part of individuals; ‘I am more than my genome’; the individual's property vs the common go

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Author

Chloé Mayeur; Wannes Hoof

Publisher

Wiley

Published

2021

Language

EN

Field

Health Professions (Health Sciences)