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Caregiver burden among parents of children with chronic diseases: A cross‐sectional study by Khulood Kayed Shattnawi; Nahla Al Ali; Ala'a Aref Almanasreh; Mohammad A. Al‐Motlaq is a Medicine article available to read on EtoBox.

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## Aims and Objectives This study aimed to assess the perceived caregiver burden among parents of chronically ill children in Jordan. ## Background Although there are few studies on the accurate prevalence of chronic diseases among Jordanian children, there are a few on the burden of caregiving, which is important because most children with chronic illness rely on their caregivers to perform their daily tasks. In Jordan, little is known about the caregiver burden associated with caring for children with chronic diseases. ## Design A cross-sectional design was reported in line with the STROBE guidelines. ## Methods The Katz Index of Independence was used to determine the children's level of dependence, and the Burden Scale for Family Caregivers was used to measure the caregivers' level of burden. ## Results Nearly, 49.3% of caregivers had a very severe burden, 31.2% of children had a severe functional impairment, 19.6% had a moderate impairment, and 49.3% had full functionality. Based on their children's dependency, caregivers' subjective burden varied greatly (__p__ < .001). Fully functional children had a far lower disease burden than severely and moderately disabled children (__p

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Author

Khulood Kayed Shattnawi; Nahla Al Ali; Ala'a Aref Almanasreh; Mohammad A. Al‐Motlaq

Publisher

Wiley

Published

2023

Language

EN

Field

Medicine (Health Sciences)