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The voice of caregivers of children and adolescents with spinal cord injuries: A scoping review by Elin Salmiranta; Kristina Areskoug Josefsson; Marlene Ockander; Marika Augutis; Daniel Masterson is a Medicine article available to read on EtoBox.

What is The voice of caregivers of children and adolescents with spinal cord injuries: A scoping review about?

## Context Participation in SCI research with caregivers of children and adolescents with spinal cord injury (SCI) can occur in a range of different ways. This review explores the extent to which caregivers’ participation is connected to what might be called a voice. ## Objectives To explore the voice of caregivers by collating available research with the participation of caregivers of children and adolescents with SCI, and synthesizing how the research has been conducted. ## Methods The databases CINAHL, ERIC, MEDLINE, PsycInfo, and Scopus were searched for articles published between January 2008 and March 2022. Descriptive and narrative information was extracted and factors describing how caregivers participated were identified using an inductive approach. ## Results Twenty-nine articles were identified, of which 28 had affiliations connected to the USA, and 25 to Shriners Hospitals for Children. In most of the articles, the caregivers were invited to participate in the research to complete or develop measures. Information from the caregivers was often captured using close-structured questions and summarized quantitatively with little or no exploration of the perspectives of the

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Author

Elin Salmiranta; Kristina Areskoug Josefsson; Marlene Ockander; Marika Augutis; Daniel Masterson

Publisher

Taylor & Francis

Published

2023

Language

EN

Field

Medicine (Health Sciences)