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End-of-life care for people with advanced dementia and pain: a qualitative study in Swedish nursing homes by Lundin, Emma (author);Godskesen, Tove E. (author) is a Health Professions article available to read on EtoBox.

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## Abstract ## Background Of the Swedish people with advanced dementia, the majority die in nursing homes. Unresolved pain can occur in people with a terminal illness such as dementia. However, pain management in people with advanced dementia is often suboptimal and inadequate, with fewer palliative care interventions than offered to cancer patients. Although they are largely responsible for the care of these people, few studies have addressed the experiences of registered nurses in this respect. Therefore, the aim of this study was to describe the experiences of nurses in caring for people with advanced dementia and pain at the end of life. ## Methods The study had a descriptive explorative design. Individual qualitative, semi-structured interviews were carried out with 13 nurses from 12 nursing homes in Sweden. The results were analysed using thematic content analysis. ## Results The nurses described communicative, relational and organisational challenges. One major issue involved difficulties communicating with the person with advanced dementia, resulting in uncertain pain assessment. Other difficulties involved the differentiation of pain from anxiety, the balance of benefits a

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Author

Lundin, Emma (author);Godskesen, Tove E. (author)

Publisher

Springer Science and Business Media LLC

Published

2021

Language

EN

Field

Health Professions (Health Sciences)