Can I read A Qualitative Interview Study to Explore Adolescents’ Experience of Alopecia Areata and the Content Validity of Sign/symptom Patient‐reported Outcome Measures\* on EtoBox?
A Qualitative Interview Study to Explore Adolescents’ Experience of Alopecia Areata and the Content Validity of Sign/symptom Patient‐reported Outcome Measures\* by Jake Macey; Helen Kitchen; Natalie V.J. Aldhouse; Emily Edson‐Heredia; Russel Burge; Apurva Prakash; Brett A. King; Natasha Mesinkovska is a Medicine article available to read on EtoBox.
What is A Qualitative Interview Study to Explore Adolescents’ Experience of Alopecia Areata and the Content Validity of Sign/symptom Patient‐reported Outcome Measures\* about?
## Summary ## Background The content validity (appropriateness and acceptability) of patient‐reported outcome (PRO) measures for scalp hair loss, eyebrow loss, eyelash loss, nail damage and eye irritation has been demonstrated in adults with alopecia areata (AA) but not adolescents. ## Objectives To explore the content validity of the suite of AA PRO measures and accompanying photoguides in an adolescent sample. ## Methods Semi‐structured, 90‐min, combined concept elicitation and cognitive interviews were conducted face‐to‐face with adolescents who experienced ≥ 50% AA‐related scalp hair loss. Transcripts underwent thematic and framework analysis. ## Results Eleven adolescents (aged 12–17 years, 55% female, 45% nonwhite) diagnosed with AA for 5·9 years (mean) participated. Participants had 69·6% scalp hair (mean) and current eyebrow (82%) and/or eyelash loss (82%) and/or nail involvement (36%). Adolescents reported scalp, eyebrow and eyelash hair loss as their top three most bothersome signs/symptoms. Despite mostly accepting their AA, impacts related to visible areas of hair loss were prominent. Participants demonstrated good understanding and appropriate use of the PRO measures,
Who reads A Qualitative Interview Study to Explore Adolescents’ Experience of Alopecia Areata and the Content Validity of Sign/symptom Patient‐reported Outcome Measures\*?
It is typically read by researchers, students, and practitioners in Medicine.
- Author
- Jake Macey; Helen Kitchen; Natalie V.J. Aldhouse; Emily Edson‐Heredia; Russel Burge; Apurva Prakash; Brett A. King; Natasha Mesinkovska
- Publisher
- Oxford University Press (OUP)
- Published
- 2022
- Language
- EN
- Field
- Medicine (Health Sciences)