Can I read Data governance on EtoBox?

Data governance by Dimitri Patrinos; Michael Lang; Ma'n H. Zawati is a book available to read on EtoBox.

What is Data governance about?

### 12.1 Background: precision medicine genomics and governance There has been significant progress in genomics over the last two decades. Recent advances in our understanding of human genetics and genomics have accelerated the development of highly targeted healthcare. Genomic data are now available in unprecedented volumes and are increasingly integrated with individual health records, permitting significant improvements in the kind of phenotype characterization that makes highly targeted medical care possible. But achieving the goal of precisely targeted healthcare will require a significant degree of coordination among clinicians, health researchers, and patient interest communities. It will require effective, ethical, and legally compliant data sharing that both facilitates the discovery of new treatments and maintains trust between health institutions and the public. Data governance, in short, is essential for genomics to have a significant impact on precision medicine. Constructed broadly, data governance refers to the policies and frameworks, both internal and external to a biobank, consortium, or other genomics initiative, that modulate the conduct of researchers and insti

Author

Dimitri Patrinos; Michael Lang; Ma'n H. Zawati

Publisher

Elsevier Science & Technology

Published

2023

Language

EN

ISBN

9780128198032