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Growing up and moving on in rheumatology: Parents as proxies of adolescents with juvenile idiopathic arthritis by K. L. Shaw; T. R. Southwood; J. E. McDonagh is a Medicine article available to read on EtoBox.

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## Abstract ## Objective To examine agreement about physical health, functional ability, and health‐related quality of life (HRQOL) between adolescents with juvenile idiopathic arthritis (JIA) and their parents. ## Methods The study group comprised 303 adolescent‐parent dyads who completed individual questionnaires, including the Childhood Health Assessment Questionnaire with visual analog scales for pain and general well‐being, and the Juvenile Arthritis Quality of Life Questionnaire. Agreement was determined using the Bland and Altman method. ## Results Approximately half of the adolescent‐parent dyads showed clinically acceptable agreement for pain, general well‐being, functional disability, and HRQOL. Where discrepancies occurred, there were similar numbers of parental overestimation and underestimation, with the exception that parents rated functional ability worse than did adolescents. Parents were also consistent with respect to overestimation or underestimation, irrespective of the health domain in question. Agreement was associated with better disease‐related outcome variables, but was not significantly influenced by demographic factors. Agreement between adolescents and p

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Author

K. L. Shaw; T. R. Southwood; J. E. McDonagh

Publisher

John Wiley and Sons; Wiley (John Wiley & Sons); John Wiley & Sons Inc.; Wiley (ISSN 0004-3591)

Published

2006

Language

EN

Field

Medicine (Health Sciences)