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Extending the Minimum Information About BIobank Data Sharing Terminology to Describe Samples, Sample Donors, and Events by Niina Eklund; Ny Haingo Andrianarisoa; Esther van Enckevort; Gabriele Anton; Annelies Debucquoy; Heimo Müller; Linda Zaharenko; Cäcilia Engels; Lars Ebert; Michael Neumann; Joachim Geeraert; Veronique T'Joen; Hans Demski; Élodie Caboux; Rumyana Proynova; Barbara Parodi; Sebastian Mate; Erik van Iperen; Roxana Merino-Martinez; Philip R. Quinlan; Petr Holub; Kaisa Silander is a Medicine article available to read on EtoBox.

What is Extending the Minimum Information About BIobank Data Sharing Terminology to Describe Samples, Sample Donors, and Events about?

**__Introduction:__** The Minimum Information About BIobank data Sharing (MIABIS) was initiated in 2012. MIABIS aims to create a common biobank terminology to facilitate data sharing in biobanks and sample collections. The MIABIS Core terminology consists of three components describing biobanks, sample collections, and studies, in which information on samples and sample donors is provided at aggregated form. However, there is also a need to describe samples and sample donors at an individual level to allow more elaborate queries on available biobank samples and data. Therefore the MIABIS terminology has now been extended with components describing samples and sample donors at an individual level. **__Materials and Methods:__** The components were defined according to specific scope and use cases by a large group of experts, and through several cycles of reviews, according to the new MIABIS governance model of BBMRI-ERIC (Biobanking and Biomolecular Resources Research Infrastructure–European Research Infrastructure Consortium). The guiding principles applied in developing these components included the following terms: model should consider only samples of human origin, model should

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Author

Niina Eklund; Ny Haingo Andrianarisoa; Esther van Enckevort; Gabriele Anton; Annelies Debucquoy; Heimo Müller; Linda Zaharenko; Cäcilia Engels; Lars Ebert; Michael Neumann; Joachim Geeraert; Veronique T'Joen; Hans Demski; Élodie Caboux; Rumyana Proynova; Barbara Parodi; Sebastian Mate; Erik van Iperen; Roxana Merino-Martinez; Philip R. Quinlan; Petr Holub; Kaisa Silander

Publisher

Mary Ann Liebert; Mary Ann Liebert Inc.; Mary Ann Liebert Inc (ISSN 1947-5535)

Published

2020

Language

EN

Field

Medicine (Health Sciences)