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Development of a core outcome set for congenital pulmonary airway malformations: study protocol of an international Delphi survey by Hermelijn, Sergei (author);Kersten, Casper (author);Mullassery, Dhanya (author);Muthialu, Nagarajan (author);Cobanoglu, Nazan (author);Gartner, Silvia (author);Bagolan, Pietro (author);Mesas Burgos, Carmen (author);Sgro, Alberto (author);Heyman, Stijn (author);Till, Holger (author);Suominen, Janne (author);Schurink, Maarten (author);Desender, Liesbeth (author);Losty, Paul (author);Ertresvag, Kjetil (author);Tiddens, Harm A W M (author);Wijnen, Rene M H (author);Schnater, Marco (author) is a Medicine article available to read on EtoBox.

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## Introduction A worldwide lack of consensus exists on the optimal management of asymptomatic congenital pulmonary airway malformation (CPAM) even though the incidence is increasing. Either a surgical resection is performed or a wait-and-see policy is employed, depending on the treating physician. Management is largely based on expert opinion and scientific evidence is scarce. Wide variations in outcome measures are seen between studies making comparison difficult thus highlighting the lack of universal consensus in outcome measures as well. We aim to define a core outcome set which will include the most important core outcome parameters for paediatric patients with an asymptomatic CPAM. ## Methods and analysis This study will include a critical appraisal of the current literature followed by a three-stage Delphi process with two stakeholder groups. One surgical group including paediatric as well as thoracic surgeons, and a non-surgeon group including paediatric pulmonologists, intensive care and neonatal specialists. All participants will score outcome parameters according to their level of importance and the most important parameters will be determined by consensus. ## Ethics an

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Author

Hermelijn, Sergei (author);Kersten, Casper (author);Mullassery, Dhanya (author);Muthialu, Nagarajan (author);Cobanoglu, Nazan (author);Gartner, Silvia (author);Bagolan, Pietro (author);Mesas Burgos, Carmen (author);Sgro, Alberto (author);Heyman, Stijn (author);Till, Holger (author);Suominen, Janne (author);Schurink, Maarten (author);Desender, Liesbeth (author);Losty, Paul (author);Ertresvag, Kjetil (author);Tiddens, Harm A W M (author);Wijnen, Rene M H (author);Schnater, Marco (author)

Publisher

BMJ

Published

2021

Language

EN

Field

Medicine (Health Sciences)