Can I read 7923 Establishment of the National Endometriosis Clinical and Scientific Trials (NECST) Registry in Australia on EtoBox?

7923 Establishment of the National Endometriosis Clinical and Scientific Trials (NECST) Registry in Australia by C. Ng; A. Michelmore; G. Mishra; G. Montgomery; P.A. Rogers; J.A. Abbott is a Medicine article available to read on EtoBox.

What is 7923 Establishment of the National Endometriosis Clinical and Scientific Trials (NECST) Registry in Australia about?

Study Objective To establish a nationally coordinated clinical database on endometriosis in response to the Australian National Action Plan for Endometriosis (2018)1. Design An online, secure cloud-based data base with minimum core clinical and health data are collected across eight modules: 1) Demographics 2) Clinical Presentation 3) PROMs including the Euroqol (EQ)-5D and Endometriosis Health Profile (EHP)-30, 4) Clinical Presentation Diagnosis, 5) Imaging (ultrasound and/or MRI) 6) Medical Management 7) Surgical Management and 8) Histopathology. Participants in the NECST Registry are followed up at 6, 12 months and annually, capturing changes to their symptoms and management and to complete the PROMs EQ-5D and EHP-30 questionnaires. Setting Recruitment is possible from hospitals, specialist private clinics, and the general community via social media. Patients or Participants Women and people assigned female at birth, 18 years and over, experiencing endometriosis-related symptoms (chronic pelvic pain, infertility and/or abnormal uterine bleeding) or have been diagnosed with endometriosis or a related condition (adenomyosis). Interventions N/A. Measurements and Main Results To dat

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Author

C. Ng; A. Michelmore; G. Mishra; G. Montgomery; P.A. Rogers; J.A. Abbott

Publisher

Elsevier BV

Published

2022

Language

EN

Field

Medicine (Health Sciences)