About this document
Caregiver Burden in Epidermolysis Bullosa by Carla Ponce de León is a document available to read on EtoBox.
This study evaluates the burden of epidermolysis bullosa (EB) on families in France, highlighting significant out-of-pocket expenses and caregiver stress. A survey of 77 parents revealed an average annual out-of-pocket cost of €4,129, with a strong correlation between the burden of disease and financial strain. The findings underscore the substantial impact of EB on daily family life and the economic challenges faced by caregivers.
- Author
- Carla Ponce de León
- Language
- EN