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Illness identity in adults with congenital heart disease: Longitudinal trajectories and associations with patient‐reported outcomes and healthcare use by Liesbet Van Bulck; Eva Goossens; Silke Apers; Philip Moons; Koen Luyckx is a Health Professions article available to read on EtoBox.

What is Illness identity in adults with congenital heart disease: Longitudinal trajectories and associations with patient‐reported outcomes and healthcare use about?

## Abstract ## Aims The aims of this study were to investigate the development of illness identity, the degree to which the disease is integrated into one's identity, by identifying trajectory classes in adults with congenital heart disease (CHD) and to describe these classes in terms of age, sex, disease complexity, patient‐reported outcomes (PROs) and healthcare use. ## Design This three‐wave observational cohort study was carried from 2013 till 2015 and includes 276 adults (median age: 34 years; 54% men) with CHD. ## Methods Illness identity entails four dimensions: engulfment, rejection, acceptance and enrichment. PROs included perceived health status, quality of life and psychological distress. Latent class growth analysis, analysis of variance, Poisson regression and negative binomial regression analyses were performed. ## Results Illness identity was relatively stable over time. The identified classes were meaningfully different in terms of age, disease complexity, PROs and healthcare use. Patients who did not reject their disease, patients who were not overwhelmed or patients who accepted their disease over time reported better health status and quality of life and less psy

Who reads Illness identity in adults with congenital heart disease: Longitudinal trajectories and associations with patient‐reported outcomes and healthcare use?

Author

Liesbet Van Bulck; Eva Goossens; Silke Apers; Philip Moons; Koen Luyckx

Publisher

Wiley

Published

2021

Language

EN

Field

Health Professions (Health Sciences)